For two and half decades the CDC direction regarding the CFS research program, which includes prevention, course of treatment, medical provider education and public information has been controversial, divisive and spotty at best.
P.A.N.D.O.R.A.- Patient Alliance for Neuroendocrineimmune Disorders Organization for Research & Advocacy, Inc, a charitable (501 c 3) organization advocating for the chronically ill and an organization that I support, is launching a nationwide & international advocacy alliance with strategical partners around the world, for the main purpose for the establishment of Neuroendocrineimmune Disorders Research Centers in the U.S. and overseas. This is the first poll of a proposed 10 single poll questions. If you have not participate please do it now.
Click here or cut and past the link below in your browser to answer the single poll question:
http://survey.constantcontact.com/poll/a07e2j0j8jpfvjw46k4/start.html
P.A.N.D.O.R.A. along with the strategical partners' alliance will then take the answer results to the CDC, to Congress, to the National Institute of Health (NIH), to the Social Security Administration, to the Department of Health and Human Services (DHHS) officials and other interested parties. So please join me, and our voices will be stronger.
ONE VOICE, ONE COMMUNITY, ONE CAUSE!
NOTE: Here in my blog there is also another single poll question that I ask everyone to participate. P.A.N.D.O.R.A. will be taking the answers to the legislators in the state of New Jersey as we address the overlapping of neuroendocrineimmune disorders and its relations to other chronic emerging illnesses.
IT IS TIME FOR CHANGE!...to be continued
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