Here is the Press Release covering a historical moment in our overall advocacy community. I am proud to be part of this movement. A huge thanks to the MCWPA team and to the PANDORA team who in collaboration with hundreds of other patients advocates worldwide have raised the bar in advocacy strategy and commitment.
My special gratitude goes to Tina Tidmore, Sita Harrison, Kathryn Stephens, Sharon Stapleton, Andrea Pring, Karen Ravitz, Lynn Bousquet.
To the organizations who supported the advertisement in The Washington Post: P.A.N.D.O.R.A. Inc., Vermont CFIDS Association, Inc., R.E.S.C.I.N.D., Rocky Mountain CFS/ME and FM Association and the Wisconsin ME/CFS Association, Inc.
To the creative bunch of CFS-ME patients who designed incredible ads projecting our unique voice, I am grateful.
To the Time for Action team : Charlotte von Salis, Bob Miller and Rivka, I am grateful.
To the angel donors who donated generously, I am grateful.
To patients who contributed generously to the cause, I am grateful.
To everyone who believed in the cause-project, WE are grateful.
Click in the link below and give yourself a pat in the back, because WE are no longer invisible. The best is yet to come.
Chronic Fatigue Syndrome Patients Run First-ever Ad in The Washington Post
One Voice, One Community, One Cause(tm)
P.S.: Please visit MCWPA.org today. Donate to the cause-project as generously as you can.
One Agent for Change is the blog of Marly Silverman, a patient advocate and founder of P.A.N.D.O.R.A.-Patient Alliance for Neuroendocrineimmune Disorders Organization for Research and Advocacy, Inc, a nonprofit, charitable (501 c 3) organization dedicated to create awareness myalgic encephalomyelitis (ME), also known in the U.S. as chronic fatigue syndrome (CFS) fibromyalgia (FM), multiple chemical sensitivities(MCS), chronic Lyme disease (CLD), and Gulf War Illness (GWI/GWS)
Well-Come!
Well-Come to Agent for Change, a blog created by Marly Silverman, to serve as a catalyst for change that is much needed on the issues affecting millions of individuals stricken with neuroendocrineimmune disorders worldwide. Through this blog I want to share ideas, exchange, communicate and find solutions for everyday living. The goal is to pursue quality of life that will make a difference in the lives of individuals with neuroendocrineimmune disorders (NEIDs).
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