Well-Come to Agent for Change, a blog created by Marly Silverman, to serve as a catalyst for change that is much needed on the issues affecting millions of individuals stricken with neuroendocrineimmune disorders worldwide. Through this blog I want to share ideas, exchange, communicate and find solutions for everyday living. The goal is to pursue quality of life that will make a difference in the lives of individuals with neuroendocrineimmune disorders (NEIDs).

Tuesday, May 4, 2010

'News from P.A.N.D.O.R.A. - May 2010'

Dear Friends,

I am on vacation with hubby but I want to share with you the latest PANDORA's newsletter. May is PANDORA's Awareness Month for Neuroendocrineimmune disorders. We have several events in South Florida that we are sponsoring and/or supporting, starting with May 8, 2010 lecture by Dr. Nancy Klimas, then May 11 meeting at the Center for Independent Living (CILB) then the event on May 12, in Boca Raton for Fibromyalgia and related chronic illnesses and finally the events on May 12 by the Fibromyalgia Support Group of Boynton Beach. We have also gathered proclamation day letters from the cities of Murphy, North Carolina, Columbus, Ohio and Pompano Beach, Florida declaring May 12, P.A.N.D.O.R.A.'s International Awareness Day for Neuroendocrineimmune Disorders. Click on the link below for complete information on these events and much more.

'News from P.A.N.D.O.R.A. - May 2010'

Happy Mother's Day!

We hope you will participate in these events if you live in South Florida and if not please join one in your neighborhood. There will be so many events worldwide celebrating and empowering members of our overall community.
Take ownership of your future by donating today towards the NEI Center(tm) in New Jersey.

Marly Silverman

1 comment:

Mallory said...

I am so grateful for all your hard work. I have found that a lot of doctors don't really believe in CFS and they seem to think I was making it up, but the book "Beat Sugar Addiction Now!" is written by a doctor and he knows so much about it. I feel like I learned a lot about my own body just by reading the section on CFS, and it made me annoyed that no one had told me this before. I started reading the book because I thought it was a diet book and would maybe help me lose weight, and if I wasn't carrying around so much weight maybe I would feel better overall and be less achy. But it's actually a whole part on CFS is in it and I learned a lot about my hypothalamus that I never knew before. The information is good and smart science but not too hard to understand. You need to find help if you have what I have-so much pain it hurts to pull my shirt over my head or bend down to tie my shoes. I had to start wearing ugly crocs just because they were easier to put on and more comfortable, and that is not who I wanted to be-a fat person in unstylish shoes who has trouble getting in and out of the car. I feel like if I can find a doctor who will help me and I can do what it says in this book, I will get a lot better. It is written very convincingly and you can tell he knows what he's talking about. Plus he has a list to help you find doctors that treat CFS and I am ready to get treated and stop feeling like my nerves are exposed every time I move. Here's the website for Dr. Jacob Teitelbaum: http://endfatigue.com/