In the past year, P.A.N.D.O.R.A.'s Facebook page and our Twibe on Tweeter have been doing well because we have wonderful administrators helping us to stay in touch with members of our community.
I want to acknowledge a few from the U.S. today: Susan Cue-Sugman, Jill Serotta (who is taking a break for now) and Mary Ann Parker. These amazing ladies have spent hours posting relevant materials and responding to question that often pop up on our social sites.
I am grateful for their commitment and support of P.A.N.D.O.R.A. They are indeed Advocates Extraordinaire!
P.S.: Please note that in order to see the links for Sus and Jill you must log in to Facebook or sign up for it.
One Agent for Change is the blog of Marly Silverman, a patient advocate and founder of P.A.N.D.O.R.A.-Patient Alliance for Neuroendocrineimmune Disorders Organization for Research and Advocacy, Inc, a nonprofit, charitable (501 c 3) organization dedicated to create awareness myalgic encephalomyelitis (ME), also known in the U.S. as chronic fatigue syndrome (CFS) fibromyalgia (FM), multiple chemical sensitivities(MCS), chronic Lyme disease (CLD), and Gulf War Illness (GWI/GWS)
Well-Come!
Well-Come to Agent for Change, a blog created by Marly Silverman, to serve as a catalyst for change that is much needed on the issues affecting millions of individuals stricken with neuroendocrineimmune disorders worldwide. Through this blog I want to share ideas, exchange, communicate and find solutions for everyday living. The goal is to pursue quality of life that will make a difference in the lives of individuals with neuroendocrineimmune disorders (NEIDs).
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