Well-Come to Agent for Change, a blog created by Marly Silverman, to serve as a catalyst for change that is much needed on the issues affecting millions of individuals stricken with neuroendocrineimmune disorders worldwide. Through this blog I want to share ideas, exchange, communicate and find solutions for everyday living. The goal is to pursue quality of life that will make a difference in the lives of individuals with neuroendocrineimmune disorders (NEIDs).

Sunday, November 1, 2009

CFSAC: Marly Silverman Patient Testimony 5

The trip to Washington DC to attend the CFS Advisory Committee meeting was amazing. The first day of the CFSAC meeting the room was packed with patients, researchers and family members. The meeting was held inside the main lobby of the Dept of Health and Human Services. It was an elaborate set up. A main video screen was up towards the ceiling surrounded by dark blue curtains. When the presentation were being made the audience faced the U-Shaped tables covered with dark blue tablecloths, where the CFSAC members were sitting surrounded by microphones, AV equipment and 3 video cameras.
More comments and some personal take on the 2-day meeting as soon as I am able to recoup from the trip.
1 Voice, 1 Community, 1 Cause!

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