It has been a while since I have posted anything on this blog. I am glad to be back. My maezinha (Mommy) Zuleide also lovingly known as Zuzu by her daughters, family and closed friends passed away this February 20. It was a huge personal loss. I hope soon I will be able to talk a bit more about this personal loss without teary eyes.
For now all I have to say is has been a while. I have plenty to share about PANDORA. It is good to be back!
One Agent for Change is the blog of Marly Silverman, a patient advocate and founder of P.A.N.D.O.R.A.-Patient Alliance for Neuroendocrineimmune Disorders Organization for Research and Advocacy, Inc, a nonprofit, charitable (501 c 3) organization dedicated to create awareness myalgic encephalomyelitis (ME), also known in the U.S. as chronic fatigue syndrome (CFS) fibromyalgia (FM), multiple chemical sensitivities(MCS), chronic Lyme disease (CLD), and Gulf War Illness (GWI/GWS)
Well-Come!
Well-Come to Agent for Change, a blog created by Marly Silverman, to serve as a catalyst for change that is much needed on the issues affecting millions of individuals stricken with neuroendocrineimmune disorders worldwide. Through this blog I want to share ideas, exchange, communicate and find solutions for everyday living. The goal is to pursue quality of life that will make a difference in the lives of individuals with neuroendocrineimmune disorders (NEIDs).
Monday, August 10, 2009
Subscribe to:
Post Comments (Atom)
No comments:
Post a Comment