Here is PANDORA's latest newsletter. It is good reading!
'Click the Share button to create links to this email on popular social networking and bookmarking size like Facebook, Twitter, and Digg.'
One Agent for Change is the blog of Marly Silverman, a patient advocate and founder of P.A.N.D.O.R.A.-Patient Alliance for Neuroendocrineimmune Disorders Organization for Research and Advocacy, Inc, a nonprofit, charitable (501 c 3) organization dedicated to create awareness myalgic encephalomyelitis (ME), also known in the U.S. as chronic fatigue syndrome (CFS) fibromyalgia (FM), multiple chemical sensitivities(MCS), chronic Lyme disease (CLD), and Gulf War Illness (GWI/GWS)
Well-Come!
Well-Come to Agent for Change, a blog created by Marly Silverman, to serve as a catalyst for change that is much needed on the issues affecting millions of individuals stricken with neuroendocrineimmune disorders worldwide. Through this blog I want to share ideas, exchange, communicate and find solutions for everyday living. The goal is to pursue quality of life that will make a difference in the lives of individuals with neuroendocrineimmune disorders (NEIDs).
Tuesday, October 27, 2009
Thursday, October 22, 2009
We are now 7 days before the next CFSAC Meeting in DC - This video should get you fired up to attend! "Does a Virus Cause Chronic Fatigue"
We are just about 7 days before the next CFSAC Meeting in Washington DC on October 29-30, 2009. This video should get you fired up to attend such an important meeting. We, patients need to show up in great numbers. We need to carry signs, t-shirts, bring pictures for the Empty Chair Project and if you are going to speak during the assigned public testimony periods, please send me an e-mail at msilverman@pandoranet.info with your prepared text. I am attempting to publish and publicize every poignant testimony, even if it is barely a whisper like in the case of Laurel Bertrand let me know, so we can share your story as well before, during and after the meeting.
IT IS TIME FOR CHANGE!
Does a Virus Cause Chronic Fatigue?
IT IS TIME FOR CHANGE!
Does a Virus Cause Chronic Fatigue?
Thursday, October 8, 2009
AMERICA'S GIVING CHALLENGE - The Neuroendocrineimmune (NEI) Center
P.A.N.D.O.R.A.'s cause on Facebook is The NeuroEndocrineImmune (NEI) Center -
Our cause is in America's Giving Challenge—Let's win $50,000!
Hi everyone,
Our cause just entered in America's Giving Challenge, which gives us a chance to win $50,000! To win, between now and November 7th we have to get the most donations to our cause (every person can donate once per day and have it count as a unique donation). We can also win daily awards of $1,000 and $500 if we can get the most people to donate in any 24-hour period. The great thing about this Challenge is that it doesn't matter how much you give, but instead how much you do to encourage friends and family to get involved in our cause. We all need to come together and start promoting the cause if we want to win.
A $10 donation is what I am asking to all of PANDORA's members, my family, my friends, my colleagues and our corporate supporters. Please do it NOW, because competition is fierce and we need to have what they call "unique donations", which means donations made by different individuals every day. The challenge will run from Oct 7 to November 6. The clock is ticking.
Each of us has tons of friends on Facebook who we can ask to donate to our cause. But let's think big too—can you put our cause in your email signature, can you throw a party and get people to donate through the cause when they enter, can you organize other people to go out and fundraise from all of their friends? As you reach out to your friends be sure to tell them why this cause matters to you. The possibilities are endless so let's talk about what we can do to win on the Wall of the cause or by replying to this bulletin.
I think we can do it! But it's going to take all of us. Check out the Giving Challenge ( www.causes.com ), then visit our cause to see how we're doing so far and get involved.
Let's win $50,000 for our cause!
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