I am here in Washington DC attending the CFSAC meeting. I am late for the meeting as it was hard getting up so early this morning.
I made PANDORA’s presentation yesterday as there was room in the schedule due to no shows. Mary Schweitzer helped me to line up the pictures of CFS patients who could not attend this meeting as part of the Empty Chair Project – we will continue to do this until the DHHS provides a real time access to the meeting either in audio or video format.
I am having a hard time dealing with the pc technology including posting this to my blog. I hope it works.
Please check PANDORA’s web site next week to read the presentations made at this meeting. (Cort Johnson, Mary Schweitzer, Marly Silverman and another patient advocate whose name is escaping me now.)
I will be back soon posting additional information.
